H.R. 3916: My Body, My Data Act of 2025
This bill, titled the My Body, My Data Act of 2025, aims to protect the privacy of personal reproductive and sexual health information. Here are the main provisions of the bill:
Scope of the Bill
The bill defines "personal reproductive or sexual health information" as any information related to an individual's reproductive or sexual health, including but not limited to:
- Health conditions and diagnoses, such as pregnancy and sexually transmitted diseases.
- Use or purchase of reproductive health services, contraception, and medications.
- Information inferred from data related to reproductive health.
Collection and Use of Information
The bill stipulates that regulated entities (such as businesses that provide health-related services) may only collect, use, retain, or disclose personal reproductive or sexual health information when it is strictly necessary to provide requested services. Furthermore, access to such information must be limited to employees who need it to fulfill that specific purpose.
Individual Rights
The bill establishes several rights for individuals regarding their personal reproductive or sexual health information:
- Right of Access: Individuals can request and receive details about their retained personal information, including how it was collected and shared.
- Right of Correction: Individuals may request corrections to inaccurate information.
- Right of Deletion: Individuals can request the deletion of their personal information.
Entities must respond to these requests within 15 days and cannot charge individuals for these requests.
Privacy Policies
Regulated entities are required to maintain and publicly publish a privacy policy that clearly outlines their data practices. This policy must include:
- Descriptions of data collection, use, and sharing practices.
- Categories of data collected and the purposes for collection.
- Information on third parties with whom data may be shared.
Prohibition Against Retaliation
The bill prohibits regulated entities from retaliating against individuals who exercise their rights under the act. This includes unfair treatment, such as denying services or charging higher prices, based on the exercise of those rights.
Enforcement
The Federal Trade Commission (FTC) is given authority to enforce the regulations set forth in this bill. Violations may be treated as unfair or deceptive practices under current FTC regulations. Individuals may also bring civil actions for violations, with possible damages awarded ranging from $100 to $1,000 per day, or actual damages, whichever is greater.
Definitions and Context
Regulated entities are defined broadly, including various businesses engaged in commerce, but exclude entities governed by existing HIPAA regulations. This bill aims to provide specific protections around reproductive health data, which may not be adequately protected under current laws.
Relationship to Other Laws
The bill explicitly states that it does not preclude state or federal laws that provide greater privacy protections. Additionally, it preserves First Amendment rights, ensuring that the act does not conflict with free speech.
Relevant Companies
- AMGN (Amgen Inc.): As a biotech company involved in health care, Amgen may need to adjust data practices related to the collection and handling of reproductive health data.
- DANR (Danaher Corporation): This company provides medical and diagnostic products and may be impacted in its data management processes concerning reproductive health information.
- PFE (Pfizer Inc.): Pfizer, a major pharmaceutical company, may need to comply with stricter regulations regarding the collection and use of reproductive health data related to its products and services.
This is an AI-generated summary of the bill text. There may be mistakes.
Sponsors
93 bill sponsors
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TrackSara Jacobs
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TrackJake Auchincloss
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TrackBecca Balint
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TrackNanette Diaz Barragán
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TrackSuzanne Bonamici
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TrackShontel M. Brown
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TrackJulia Brownley
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TrackJanelle Bynum
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TrackSalud O. Carbajal
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TrackAndré Carson
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TrackGreg Casar
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TrackSean Casten
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TrackJudy Chu
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TrackSteve Cohen
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TrackJim Costa
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TrackJasmine Crockett
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TrackDanny K. Davis
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TrackMark DeSaulnier
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TrackSuzan K. DelBene
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TrackChristopher R. Deluzio
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TrackMaxine Dexter
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TrackLloyd Doggett
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TrackVeronica Escobar
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TrackDwight Evans
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TrackLizzie Fletcher
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TrackLois Frankel
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TrackJohn Garamendi
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TrackSylvia R. Garcia
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TrackJesús G. "Chuy" García
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TrackJared F. Golden
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TrackDaniel S. Goldman
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TrackJimmy Gomez
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TrackJosh Gottheimer
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TrackJahana Hayes
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TrackSteven Horsford
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TrackJared Huffman
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TrackPramila Jayapal
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TrackJulie Johnson
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TrackHenry C. "Hank" Johnson, Jr.
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TrackSydney Kamlager-Dove
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TrackWilliam R. Keating
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TrackRobin L. Kelly
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TrackRaja Krishnamoorthi
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TrackGeorge Latimer
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TrackSummer L. Lee
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TrackTeresa Leger Fernandez
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TrackMike Levin
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TrackSeth Magaziner
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TrackDoris O. Matsui
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TrackSarah McBride
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TrackJennifer L. McClellan
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TrackBetty McCollum
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TrackMorgan McGarvey
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TrackJames P. McGovern
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TrackLaMonica McIver
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TrackKweisi Mfume
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TrackDave Min
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TrackGwen Moore
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TrackJoseph D. Morelle
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TrackSeth Moulton
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TrackJerrold Nadler
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TrackEleanor Holmes Norton
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TrackJimmy Panetta
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TrackScott H. Peters
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TrackMike Quigley
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TrackDelia C. Ramirez
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TrackEmily Randall
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TrackDeborah K. Ross
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TrackRaul Ruiz
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TrackAndrea Salinas
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TrackMary Gay Scanlon
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TrackKim Schrier
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TrackTerri A. Sewell
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TrackBrad Sherman
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TrackMikie Sherrill
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TrackLateefah Simon
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TrackAdam Smith
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TrackMelanie A. Stansbury
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TrackGreg Stanton
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TrackHaley M. Stevens
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TrackEric Swalwell
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TrackEmilia Strong Sykes
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TrackShri Thanedar
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TrackDina Titus
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TrackRashida Tlaib
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TrackJill N. Tokuda
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TrackPaul Tonko
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TrackRitchie Torres
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TrackLori Trahan
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TrackJuan Vargas
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TrackNydia M. Velázquez
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TrackNikema Williams
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TrackFrederica S. Wilson
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Actions
2 actions
| Date | Action |
|---|---|
| Jun. 11, 2025 | Introduced in House |
| Jun. 11, 2025 | Referred to the House Committee on Energy and Commerce. |
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