H.R. 10405: Kylie’s Voices for Childhood Cancer Act

This bill would make several changes aimed at improving how childhood cancer is addressed in state cancer control efforts and in federal health programs.

What it would require from states

For states that receive certain federal funding to develop and carry out cancer control plans, the bill would require that each state’s cancer control coalition include at least two pediatric cancer experts. In other words, states would need to make sure people with expertise in childhood cancer are part of the group helping shape the state’s cancer plan.

New federal advisory committee

The bill would create a temporary federal advisory committee called the Cancer Control Plan Pediatric Cancer Advisory Committee. The Secretary of Health and Human Services would appoint its members, including representatives from:

• the National Cancer Institute,
• the National Institutes of Health,
• the CDC’s National Comprehensive Cancer Control Program,
• a state program under Title V of the Social Security Act,
• a state program supported by the Health Resources and Services Administration, and
• two people with relevant experience, such as a pediatric cancer nonprofit staff member, a pediatric cancer expert or care team member, a survivor, or a caregiver.

This committee would be responsible for:

• developing resources, best practices, and recommendations for including pediatric cancer in state cancer control plans;
• making recommendations on how certain funds should be used to help pediatric cancer patients; and
• developing best practices for patients with adolescent and young adult cancers.

The committee would also meet once a year with state cancer control coalitions to share examples of successful pediatric cancer care models. Within two years after its first meeting, it would have to submit a report to Congress and post that report publicly on the CDC website. The committee would automatically end two years after its first meeting.

Changes to maternal and child health block grants

The bill would also update the Social Security Act to say that maternal and child health block grant funds can be used for pediatric-specific cancer initiatives and to carry out the recommendations of the new advisory committee. This would give states another permitted use for those funds related to childhood cancer efforts.

Relevant Companies

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